One week ago today Keyan had his surgery. It is just amazing all of the ups and downs he experienced, seeing him sitting next to me now like nothing happened. Kids are so resilient.
Today is bladder day. We will find out if his new bladder is functioning as it should. One of the drains from his bladder has been clamped and we will be clamping the other one so that the urine stays in the bladder rather than flowing freely out into a bag. We will have to open the clamp every hour to drain the urine 4X and then open the clamp every two hours and see how he responds. If Keyan does well with this and tolerates a regular diet he may go home tonight. Once your feeling better the hospital is anxious to discharge you. I need to be certain that I am comfortable with everything that we need to do to care for Keyan's needs at home.
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