I haven't posted in some time because Keyan has been doing so well and we have been so busy. We have all learned how to care for his drains and incisions and feel comfortable with it.
Unfortunately last night Keyan began having pain and discharge from his a part of his incision along with a lump the size of a large grape in the same area. He also began leaking urine from his stoma. Of course we were extreamly concerned and we contacted he doctor on call. This is when the frustration began, the doctor on call does not know Keyan or his case, so he is making recommendations acording to only our report. He said that the leaking of urine can happen and not to worry. He thinks that the lump can be a blood clot or a pocket of liquid and not to worry. The drainage may be the begining of an infection but because Keyan does not have a high fever or intense pain, we should wait until Tuesday to see our Urologist. If Keyan's symptoms worsen we will take him to the ER, if not, we will wait for Tuesday to arrive so we can see his doctor. Always a worry. I will keep you posted.