Today we are three days into this journey, day one was surgery and day two and three recovering. This morning Keyan is feeling more pain, we will be contacting the pain management team to get him some relief. He has an epidural which helps but is not enough. The most difficult issue for him has been not being able to eat. He is hungry, and this is a too familiar feeling for him which brings back thoughts of difficult times in his past. He told me that the hunger is worse than the pain of the surgery. I feel so sad for him. During the surgery they removed a portion of his bowel and now it is important that the bowel rest and heal. Hopefully in a couple of days...... Keyan is able to have ice chips but because he has thrown up so often, they are limiting them. Today they want to get Keyan up and sitting in a chair, yesterday he stood up for a minute or so. Keyan said that he would rather not.....we will see.
Ellie, Benjamin, Quin, Blaine, Ava, Kevin and Grandma Penny will be visiting today. Keyan is happy about this and is wondering if they are going to bring him food:(. Kevin and I were both able to be with Keyan the first two days because Grandma Penny came to stay with the kids until Sunday, we are very thankful for her help. Thanks to everyone for all of your thoughts and prayers, I will keep you posted.
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